viral panel / immunological approach

Stephen, when you came to this site approx a year or less ago, you really put forward the vassopressin theory, and controlling this hormone might be the key to the mystery of menieres. you mentioned Gibsons work on it. There was no mention of viral/immune treatment.
However, you now give us all this information on how you conquered menieres using the viral/immune approach. you say that it took a year for symptoms to resolve with this treatment.
I am just really curious as to know why you never mentioned this when you came here first, you only spoke of vassopressin even though at the time you were in the middle of your viral/immune path and on the road to recovery.
Dont take this the wrong way, just curious.

 

did your doc friends ever hint that a viral insult may upset the vassopressin hormone, thus inducing hydrops?

 

ok, so i think this thread and the whole viral/immune thing has run its course. I cant help but notice though, there are not many people on here that are interested in this approach aside from myself and possibly imnoscientist, Caroline and mystical wombat.
Am i missing something? ok, some may be suspicious of SS, and most tend to disagree or discredit his opinions and motives and that is fair enough but I am genuinely excited about this path of treatment becasue it gives a scientific based and measurable approach with its treatment.
a lot of treatments here dont have any medical proving and have no measurable way of proving their efficiacy, the treatments are based on a "try it and see" approach. it might work, it might not.
If one drills down into the evidence given, the alternative treatments here can be vague.
1. JOH. John claims 87% success rate. I have gone over and over hundreds of posts of people who have tried this approach. I have found very few gained permenant relief from symptoms of menieres. there are loads of posts that go along the line of "i tried JOH for 2 weeks and i feel great". but I am left wondering how is that person 2 years down the road, are they still symptom free? or did they just have a good few days after 2 weeks on JOH regimen. I can only recall Frank's experience with JOH, but his answer to menieres is combined with migrane diet and water pill.

I know JOH has over 200 reports on file, but I am left wondering are all these success reports of people who have tried the regimen and nothing else, and also have gained permenant relief?
Hanks Nucca approach has a shockingly low success rate, so i am left wondering are the success cases from NUCCA or did they just coincide with remission?
Dont get me wrong, I have the utmost respect for both Hank and John. I have tried Chiro with no success, but I am delighted that some have found permenant relief with it. I am actually on the JOH regimen myself and I plan to stay on it becasue there are a number of success stories with it and i want to keep my good ear good. I also deeply admire the dedication that both men have to helping others and fair play to them.
dont take this the wrong way, but these are just some points i have noticed after countless nights of reading through posts on .org, and working as an engineer i tend to take points and facts as i see them.
The main thing is, people here continue to relentlessly share what worked for them, and they have to be commended for this. but if the SS approach is scientifivally measurable, is this not a good thing and a great contribution to a an invaluable website and community to a menieres sufferer?
I am just wondering am I missing something...

 

You may be missing the drama on Spring's threads

Enjoy your Q & A quiet time. This may be the medical breakthrough for MM and we got to hear it first on .org.

In my case, I'm waiting to read about it when the papers are published in a scientific journal and made available to the general public.

 

I am a big supporter of the viral theory and SS's approach. I have had many threads of email conversation with him, as well, and I think his conclusions are highly plausible in cases where MM symptoms are viral in nature. SS readily admits that appropriate testing via the scientific method needs to be completed to verify his own findings and for them to be accepted by the medical community at large. If SS is guilty of anything, it's of perhaps premature optimism and hope.

The problem with things here as I see it is that while SS has shared key points of his protocol here on .org, as well as with those who contact him directly, the major limitation as it stands is it is nearly impossible for the average person to either get their own doctors on board with the ideas SS presents and/or get referred to the appropriate specialists who in reality may or may not be willing to follow through with the protocol anyway. There are LOTS of limitations just in actually getting the tests and meds SS recommends. I think THAT is what has significantly tamped down the enthusiasm for SS here.

I, personally, still find it all very encouraging and thought-provoking. But it is admittedly hard to follow if one doesn't have any training in immunology or the medical field and I think that, in part, feeds the skepticism and suspicion many have.

Good job, Irelandman! Thanks for persisting. Hopefully someday we can say, "I told you so!" Or that SS was right!

Hang in there all...

 

Irelandman,

Your concerns about the permanence of symptomatic relief from diligent use of my Meniere’s Treatment Regimen (latest, most successful version posted here: http://www.zoominternet.net/~kcshop/JOH.pdf) are understood. Yes, a number of “users” have posted here in recent years that the regimen brought initial symptomatic relief, but it didn’t endure.

But your real question concerns the number of those who gained authentic, enduring relief, after a year or more. And whether or not those people had also been taking something else in treatment that might have been the real cause of their relief. As I’ve stated, I’ve been diligent in not recording the reported results from any posters or emails to me that indicate the use of any other Meniere’s treatment, other than low salt and diuretics. I include those reports because every single one of them failed to get any enduing symptomatic relief on just the low salt and diuretic approach before starting the regimen. Those taking valium, SERC, had gent injections, or anything else are not included in my compilation of John of Ohio Meniere’s Meniere’s Treatment Regimen users.

And I also don’t include anyone taking the regimen for just a few days or weeks; as those reports serve no function. Like yourself, everyone wants to know if the relief, if any, will endure. I prefer the reports at six months and a full year or more.

Just yesterday I got a report from a fellow in New Mexico—who does roofing and home repair work—that after having been told by his physician to “Learn to live with it...,” he found my regimen write-up and diligently undertook it. A year later he can now function normally, thankfully.

I find that regimen users commit two mistakes. Some gain wonderful relief, for a few months or longer, and then fail to stay diligently with it. Taking the lysine three times a day can be a continuing inconvenience. With no symptoms, a few simply stop taking the regimen—only to find that symptoms soon return. Fortunately, diligent resumption of the regimen brings renewed relief (but sometimes only after a lengthy period after re-starting).

The second problem is that many are still taking old versions of the regimen. The old versions recommend only 1500 mgs of lysine. That’s simply not enough to gain symptomatic relief for many. The updated version strongly mandates 3000 mgs of lysine, in three divided, no-food doses. Before the new version was posted last year, the regimen yielded a success rate in the low 80% rate. Today, at the 3000 mg lysine dose, the regimen has an 88.26% success rate (of those who are diligently compliant for a sufficient period, at least 3 months or longer).

I’d love to have some ENT clinic “prescribe” both standard low-salt/diruetic treatments along with the JOH Regimen, and diligently compile patient results. I’m certain they would parallel the ones I have.

Glad you are giving the regimen a try. Keep us posted on your progress.

–John of Ohio

 

or maybe missing the drama from the drama queen herself..........

 

Just say the word Irelandman ;D

Like I said, eventually all of Spring's info should make its way into some scientific journal. I look forward to reading the published articles.

 

Stephen, is there any independent research that shows the efficacy of your approach?

 

Now don't give Irelandman what he wants

 

That is a simple yes or no question.

 

Irelandman: don't give her the satisfaction of calling her the Queen, the words .................... Would be much more appropriate.

Same with June!

 

Hey, leave off! Intrepid and June are my pals.....

 

Great! I'm so happy for you I can barely contain myself.

 

I also find the viral/immune approach refreshing in that it takes a quantifiable approach to solving MD. Stephen has gone far beyond what many of us could imagine to find and control the cause of MD in his case. He's had access to the only team dedicated solely to find the cause and cure for MD. Of course it is too early to say how successful his approach will be without more studies and trials. Nonetheless, I appreciate that Stephen has been willing to share this with us at such an early stage so that others may attempt to pursue a similar approach if desired without having to wait for the studies to be published.

Stephen has been very helpful to me as I attempt to go down this path myself. Admittedly, it's been difficult getting started, but nothing else has worked for me so I intend to jump whatever hurdles it takes to give this a try. I agree with others that the enthusiasm may be there, but I think you won't be hearing a lot from others trying until those hurdles are cleared.

 

what are the reports like so far? is there a high success rate among those using this method?

 

Just to be clear then, your recommendation that people follow this is based either on your interest in the theory or your personal experience but so far there are no double blind studies to support it. Is that correct?

 

SS--- in case you are looking for it or need permission, I authorize you he right to start launching scud missles as you see fit and at your discretion.


You have the patience and temperament of a Saint my friend.
Stay strong!!

 

June, with all due respect, you have asked this question numerous times on every thread and i think you know the answer and i think the dogs outside on my street probably know the answer too.
google immunology or virology treatment for menieres and there are hundreds of promising articles on the subject, so the theory holds weight.
make up your own mind after that, but no need to go through the endless useless bickering again. it serves no value here because it has been asked numerous times already.
if you didnt get the answer you looked for before, i doubt you will get it now.

 

Thanks Irelandman, You say what many think and want to say.