My website is up and running, for those that are interested in seeing some photos that are on my Meniere's DVD. The site also includes ordering and pricing information.....still only $15.00 There are testamonial feedbacks about the DVD and Meniere's information, and links. www.shutterfreaks.com/Pancy-Menieres Enjoy Tuck
Hi! Nice website, you did a very nice job! Good luck with the DVD too! Take care! (((hugs and smiles)))
WOW! the web site is great. I was able to SHOW my husband exactly what my world is like--that is great. Thanks--hopefully when money is a little more plentiful I'll be able to order the DVD--I would love to have it to show friends. Willie Marie
I just wanted to add a note......I know a lot of us are strapped for money, if it is difficult for you, let me know. we can discuss options, I would rather have someone pay a bit for the dvd and receive it rather than not having someone get one that could benefit from it. Danny
some new feedback on the dvd..... Dear Danny, My husband & I viewed the DVD ( It was so hard for me to watch as I have the visual vertigo very easy- those blinds & distortions really set it off . I think for the first time in 5 years, my husband truly had an accurate glimpse of what & how I feel- other than me trying to explain it to him. He couldn't believe how it affected him watching this & how it affects me all the time. You described in your note in the DVD how much trouble you had on the computer & with turning your head - describes me exactly. Thank you soo much for taking the time to so accurately portray how Meniere's affects us- a picture truly is worth a thousand words. I'm so sorry you've had such a rough time since surgery- I have been diagnosed with 76% loss on right vestibular nerve but I strongly suspect I'm bilateral as I have left facial pain, numbness, left trigeminal neuralgia but the docs won't confirm it- even though I've had severe bilateral tinnitus from the beginning, severe hyperacusis, & severe imbalance, disequilibrium 24/7. I've never been able to compensate because it's always fluctuating- I've been through vestibular rehab 2 times- (use the tips they taught me every day) but again like you, I had to stop or back down on the exercises because I got so deathly sick after doing them. Even cutting down on them, didn't help- I was still down for hours afterwards. I have a teenage daughter, now 19, & in college. I'm hoping she will watch the DVD. Not for sympathy or even empathy-- just for simple understanding--- of this disease that is so hard for people to comprehend. People understand heart disease & cancer - no problem. My daughter, at the beginning, before I was diagnosed- thought I was making all the symptoms up. It's been so tough on her the last 3-4 yrs - as she's had to drive, do the shopping, etc- but we're getting through it. My husband is also a huge help- he's much more understanding. I hope & pray she'll understand a little better if she'll watch it. Just wanted to let you know you've made a huge difference- by making the DVD- you've definitely found one of your purposes in life!!! BTW, the photos on your website are awesome! You are very talented. I'm hoping you'll have some better days- you certainly deserve them. Just know you've really made a positive difference in our lives by your DVD. THANKS SO MUCH!! Teri
Danny - as I have said before you did a great job on the DVD. I have shown it to my co-workers and family. It really let them know that even though most of us look perfectly normal on the outside we are fighting a battle on the inside. Recommend all to get this DVD. The pictures on his site are just the tip of the iceberg. Terry
Danny Thanks for sending me the DVD. I bought yours and Aaron's. Now, where did I put it????? Seriously, I can't find it in my hobbit hole!!! Where did I put it so that I could find it and watch it? I haven't even watched it yet. I did find the mailing envelope that it came in. ??? ??? ??? ???
Still looking for it.....Not in the machine, I just checked. I occasionally wear glasses when I read - if it is small print.
BUY this DVD!!! I did and your friends and family will have a better understanding into your world. Danny did a great job and read my post on "A Good Way to Help Others Understand". I am not kidding..... BUY it. If you can't afford it, take him up on his offer. Dave