Your Treatments

Hello everyone,

I hope everyone is well.

I've been visiting the forum frequently for the last while, but haven't posted since I was first diagnosed in 2005. I've only had 2 full on attacks to date, but starting to get dizzy spells the last few weeks. Apart from that in the last few years I've had tinnitus and off days, I've been able to work though.

I've been doing some research and I'm thinking of giving John of Ohio's regimen a go and maybe try Valtrex also.

I guess I was just wondering what treatments people are using that works for them. Apologies if this sort of post has come up before.

Thanks,
Peter

 

So far nothing is helping me. But for some other John's regimen is fantastic. It's worth a try!

Good luck.

 

Wow, that was a quick reply. Thanks utalledo

 

Give Acyclovir a try.
Same idea as Valtrex (anti viral).
Valtrex gave me headaches so changed to Acyclovir.

 

I had an endolymphatic sac surgery in my right ear in 1986, cody tack procedure in right ear in 2007, streptomycin injections in 1990, gent in left ear in 1992 and again in 1994, tried the Meniett in 2001, and endolymphatic sac surgery in left ear in 2002. In 2008 I got a cochlear implant in my right ear. I still get dizzy 5 to 40 times a month and take valium and or meclizine for dizziness. Other than that all is well.

Piggy

 

Let me know if your antiviral works.

 

Thanks for the replies guys. I'm going to give the anti-viral and supplements a go. I'd rather try that first than do invasive surgery. I'll report back how that goes and make an effort to post more on the site.

Peter.

 

Hi Peter,
I take a daily diuretic and watch my sodium intake faithfully. I was also prescribed 1 mg. valium in the morning and 1 mg. at night after a few bad attacks in May. I also started John's regimen May 23rd and I feel that it is helping. I keep rested and try not to get over tired and also keep stress under control. I have Lupus and my meniere's symptoms are possibly autoimmune related so keeping well overall helps me a bunch!

 

meds often help, but my best weapon is my attitude. This $^%@# disease cannot get the best of me.

 

hahaha that's good gardenfish!

 

Peter, the antivirals helped me (cochlear hydrops). The 2 studies I have seen are for acyclovir (Japanese study) and famvir (House Ear Clinic). I think antivirals are worth a try. Give them a month or more and then before you make up your mind.

 

I know this is controversial, but upper cervical adjustments have given me my life back. I have had menieres for 13 years. I have seen over 10 doctors and specialists. I have tried different medications, nothing worked until I found an expert upper cervical doctor. No attacks since last November. It's worth a try and not invasive like surgery. Check this out: http://www.burconchiropractic.com/g5-bin/client.cgi?G5genie=53

 

Thank you for your replies everyone. I just wanted to get an idea of what is working for different people.

Thanks,
Peter.

 

low sodium, meniett, diuretic, xanax at onset of attack, betahistine....prednisone shock when a cluster of spells hit (they stop withing 72 hrs) not sure what works and what does not....but I am much better off now vs before this therapy. The steroid works for sure.