Wow I am a newbie here

Wow looks like a great site.......Kinda happy I stumbled across it.....I have not yet been diagnosed with Meniers but it does look promising.......I have only 5% hearing in my left ear and the right is perfectly fine....My first episode of vertigo was about 2 yrs ago I had it for about 3wks and it subsided but but its been about 5yrs i have had low hearing...so I was treated I guess with a vertigo virus...Then i had another episode around nov of this year til about dec....and now having another that seems to be tapering off...so my doc which is my ent specialist sent me for my Mri which came back ok except they seem to see a vessel that is very near to the right eigth cranial nerve .which could be causing my meniers like symptoms so i have an app with the head of neurosurgeons at the JGH this thurs..and we will see what he says..I am kinda hoping it is that so it can be fixable....But there is a good chance its not....But my doc seems to be hopeful in helping me with meniers...he says there are alot of options today to treat the dizziness.... no more wine that i love hehehe and no more salt foods it is all pretty new to me.......so I have no quorms about surgery since I dont have much hearing in this ear anyways.... so i guess I have to wait and c By the way my name is Nancy and I would be greatful for any advice that you have to give me .....it would also be nice to get to no you also.....Thanks for reading about my story

 

Sorrry made a mistake with the info its my left ear that doesnt work good and my left is great...

 

Welcome gil/nancy

glad you found this place--whatever you are going through or will encounter chances are some of the many supportive folks here will have experienced it

rather than start rambling about Meniere's, I think I'll just what questions you have or what things you have wondered about--whatever you ask, someone is likely to be able to relate their experience to it

one thing I do try to always mention is "fighting this by living life"--your introduction seems upbeat and I encourage you to try and keep that attitude--focus on what is still good, try to exercise, de-stress and do all the enjoyable things you can (unless they are bad for your health)--that will help you with this challenging and perplexing malady

good luck and keep coming back

 

Thanks for your response .......I also was wondering is this a disease that comes and goes I have heard that with time for some folks it tapers off have you heard of that........By the way were are you from I am in canada

 

I am in Texas--there is a thread on The Front Porch (likely a couple of pages back) that tells where a lot of us are

and the "comes and goes" is VERY COMMON--in fact, if you were to take all MM sufferers, the course of the disease is "come and go" much more than it is constant--with members of MM.org, however, the regular posters are more likely to be bilateral, and more likely to have suffered from symptoms longer and more severely than the overall population afflicted

 

Hey Nancy - nice to meet you. Funny you would use the term "promising" re:being diagnosed with meniers ... but I can understand the need to know what's going on so you can deal with it. I confess I was actually relieved to finally put a name to what had been happening to me.

I'm from Canada too - Ottawa actually...where do you live?

Like Jim said, you sound really upbeat. A good way to look at life and a wonderful outlook for making the best of what can sometimes be a difficult situation. Sounds like you have the basics down-low salt diet, reduce the alchohol intake and take good care of yourself. And yeah - come visit us from time to time on the Board.

Cheers - Terri-Lee

 

Thanks for the support ...I did have another spell but it was around 12 pm so i took some gravel and some serc and slept it off... today I am feeling down hubby is telling me to not to worry that the docs will find a way to fix the problem I don't think he realy realizes...I have 2 children one is 13 and the other is 2 yrs and I want to be able to have just a good day with them with no dizzy spells...so hopefully since I had my last spell around 12 lastnight I should be good today...I also am making my self one decaf coffee this morning...because I deserve one .....Talk about dieting I have been wanting to do that for a while well my chance is here I am loosing weight lol....I hope theese spells will leave soon I have never had it like this before its every 48hrs at least I get one .......And maybe if it is the vessel thingy maybe it wont go away since the doc says it could be pulsing on my eighth cranial nerve who no's I will no more on thursday when I c the neorosurgeon.....Anyway today is Friday and I hope all you folks have a good wkend.......

 

Oops sorry I am from Montreal...... :

 

Welcome Nancy. THis is a great site. Good luck with your diagnosis and surgery if that is what is called for. Keep us posted on how you are doing.

 

Welcome to the Forum!

The only thing about having MM is the is predictable is the disease is unpreditable. Everyone has different degrees of symptoms, triggers, meds work for others, some not, diet works and then for others it doesn't, surgery helps but again it isn't for everyone.

Glad you found us, ask lots of questions!

Take Care
Tuck aka Danny

 

Welcome to the group! You will find plenty of information here.

Christina

 

Welcome Nancy!

I wonder if the vessel on the cranial nerve is known as a vascular loop? this was found on my mri too, but my dr. doesn't think that's what's causing my distress because he thinks I would be having other symptoms involving my facial nerve. I've wanted to get another opinion on this, because wouldn't that be something if it were, like you said, something that is fixable after surgery! I'd forgotten about this, thanks for bringing it up again. Please keep us posted with the results of your neurosurgery appt.

You've come to a very supportive group here, so hang around and we'll be glad to help you down this perplexing road of menieres.

 

well beth its called the full term lol.....there is a vascular structure most likely aica in close contact with the right eigth cranial nerve....that is what my report says hope this helps

 

Welcome Nancy,
I am glad you have found this forum. There are a lot of people that have great experience with this disease. Myself have had this for about 24 years. I want to let you know that a trigger for many of us is caffiene. Even decaf coffee has caffienein it. If you buy someting to drink check the label, if it does not say caffiene free, it is not. i kppe this helps. Be blessed. Doug

 

The more you stress the worse it is.

 

Hi nancy, nice to meet you and welcome to the forum

I am New Hampshire resident, and I have an Aunt Nancy, plus and sister Nancy so another Nancy, how nice.

You have come to the best site for support, information, and great people.

Again, welcome and have a good day.

 

Thanks for the info I do no about the caffeine ther is a drink called postum not sure if any of u have heard of it it like a breakfast drink that taste like coffee but has no way caffeine i do like herbal teas cammomile is good also but i do like to have my red wine not sure about that one yet i have not had any in a couple of wks maybe a glass soon

 

I have a vascular loop too and again my ENT says that he would only treat this with vacular decompression surgery as a very last resort as he does not believe that this is the cause of the problems either. In the UK this is the common view.

 

what is a vascular loop

 

ic just googled it lol mine seems to be right next to the eighth cranium nerve dont no if that realy makes a difference