Hi everyone Have posted on this a few times and try not to ask a lot of questions but just wondered about this one. I have had menieres for 3 years and get all the horrible everyday symptoms which really wears me down. My attacks are not so frequent which is good since I had my sac decompression surgery. Two weeks ago I had an absolutely terrible migraine which lasted 2 days. I have never had a migraine before and my husband told me the first day I got it I slept for 20 hours out of the 24 in a day. This made me think about my menieres as when I do have attacks I usually have to sleep for that length of time to start feeling a bit normal again. So I was wondering does anyone else get migraines and if so do you think or do you know if they are associated with menieres disease. many thanks for ready this everyone.
The original thinking was that I had menieres, but after various diagnosis and treatments by a long list of doctors and zillions of tests, it turns out I do not have it but have a migraine variant instead. Apparently almost all my symptoms are due to migraine (with headaches very seldom part of the picture--just occasional vertigo, constant dizziness, nausea, tiredness, sensitivity to sound and light). Since being treated for migraine and going on a very strict lifestyle change (diet, avoiding triggers) I have gotten much better. You can have migraines without the headache. This is what I have had for decades, apparently..migraines of the vestibular area. With no headache. What clinched it is I have other kinds of migraine WITH headache, and without. And me getting better by treating the migaine pretty much confirms the diagnosis. I wish you luck>>>>if this is the cause of some of your problems, then there is some kind of direction to go for treatment.
I was originally dx'd with mm but now the doctors are leaning towards mav. I never had the headaches in the beginning but now I do. Vertigo is not as bad as the beginning but the daily dizzies are with me along with an assortment of fun symptoms. The most recent doctor I went to see said mav while others have said mm. One doctor even told me I knew more about things than he did. Needless to say I don't go to him any longer. Finding a good doctor who listens to you is vital in your search for answers. (I am still searching for one myself). Good luck with everything. Donna
Audrey, I was wondering how old you are? I know that for me my mav started when the hormones started to go crazy. I was 45 when it hit me. I never had a headache, maybe a few in my life, then bam I got hit with dizziness from mav. Many woman get hit with migraine in peri menopause.
Hi! I have menieres with migraines. My migraines started after I had my first child 10 years ago. My menieres started about 3-4 years ago. So, I do not think they are related since I've had one longer than the other. (but I'm not a doctor) I've noticed that if I keep my neck and upper back muscles less tense, I get less migraines. But I still get food triggered migraines now and then which does not seem to be coorelated to my menieres.
I've had migraines for 41 years. I had my first vertigo attack last July. I really don't think mine are related. Last night for the first time, I had an attack of them both simultaneously. I've never before vomited without knowing where it was going to 'land' due to the room rushing around so violently. I've never before been afraid to move because of the repeated explosions of pain in my head making me think my entire ear systems would blow out of my head due to the pressure in my ears. The tinnitus (which is made up of three different noises anyway) developed a fourth noise and sounded like a loudly broken machine running wide open. The visual scotoma I won't try to describe but suffice to say I was glad I was home during all this. Never had a migraine with vertigo, tinnitus, and this terrible ear pressure before. And I've had migraines since I was a baby. Nowadays the migraine specialist I see has gotten my migraines under such good control (this is the first migraine I've had in three weeks--yay!) but in me, he doesn't think my MM and the migraines are related. I believe in MAV, but the doc doesn't believe its what I have.
MIGRAINES ARE NOT HEADACHES. Migraines are neurological events. Headaches are just one symptom of migraine. You can have migraine without any headache at all. My migraines, with and without headache, have vertigo, nausea, tinnitus, and ear pressure. I thought my migraine was under control because I was having headaches once very two or three years. WRONG. The dizzy/vertigo/tinnitus/nausea/photophobia/hyperacussis thing that has been trying to destroy my life is all MIGRAINE, no headache included. Other people could also have this experience. (just a note>>>people thought I was grumpy in this post, and I did not mean to be at all. I apologize, I was posting in a hurry at work and didn't want to get caught! naughty me ;D )
I have MM and MAV Thornie is the expert on MAV! I actually don't get a headache but extreem pressure behind my ears to the basae of my skull, sometimes the only thng that takes care of it is an ice pack. Keep us posted! Tuck
