What Jobs do you hold when diagnosed with MM

Discussion in 'Your Living Room' started by swirlee, Dec 8, 2008.

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  1. swirlee

    swirlee New Member

    I was definately diagnosed with MM today. I am just short of being disabled .
     
  2. LisaB

    LisaB New Member

    Hi Swirlee, have you tried any treatments for it? Many go into long remissions, and are able to "manage" with different treatments. Many here work with MM. I'm just wondering what your history is.
    There is a lot of room for hope!
    Lisa
     
  3. Linda1002

    Linda1002 New Member

    I work on a computer in an office and try to stay off the phone.
     
  4. dizzynana

    dizzynana New Member

    I was an operating room nurse--not a good place to be when one has MM. I was able to keep working till age 56, (Diagnosed with MM in my late 20's). Finally the dizzy spells, etc, got the best of me and I had to go on disability.

    Lynn
     
  5. Roger

    Roger New Member

    Before I was diagnosed I worked as a product manager for some major manufacturing corporations. I had not been diagnosed but realized that I had to get out of the pressure cooker and find a more stress free occupation. I had all the Menieres symptems without any knowledge of what was going on. I have since been to many ENT's and still looking for a physician that can give me some effective treatment. I have a strong mechanical and electrical background and was able to find the most stress free job there is. I'm a maintanence supervisor at a primate farm. It's proven to be a lot of fun and I really enjoy it. I hope to be there for another ten years. Dealing with primates is a lot easier than dealing with people. I report to DVM's that are very supportive and knowledgable of my symptoms.
     
  6. Omegaman

    Omegaman New Member

    I'm a Tilt-A-Whirl operator on a carnival midway.



    Okay, not really, but I feel like it sometimes.

    Sorry to hear of your diagnosis. Hang in there - It may feel like the end of the world, but it's not.
     
  7. annegina

    annegina New Member

    I am an RN and was diagnosed 2 years ago actually have had it for 4.
    I am in remission at present and even when I wasn't I was lucky to have my attacks in clusters and then months apart. Don't despair, remissions do come and then you really appreciate the fact that you can work, even though your job is a pain in the patoot sometimes.
     
  8. susank

    susank Guest

    I am a supervisor. I have really struggled to get thru some days due to MM. I am currently off work due to a heart condition today was the day I was supposed to start the low dose gent shots but that has been canceled for now. First I got to get my heart fixed then maybe in the future I can get the gent shots. Sorry to hear you have MM. I can remember I was actually relieved when they diagnosed me because I thought I was loosing my mind and I was relieved to know that finally there was a name and that I was not thinking up the symptoms and having panic attacks. Well the best advice I can give is to take things one day at a time. If you have to a hour at a time to get thru the day. Take care.
     
  9. peggoins

    peggoins Stop the world from spinning!!

    Hi, I was working for a video store when the symptoms first started in 2000 then went to work as a care provider for the elderly in 2002 did this till i felt i couldnt handle them and the mm and then went to work at a gas station until 2005 and then i was never able to work again.. So i got 5 years of work in before i had to give up the ghost.. Happy Holidays All!! Peg Of course i had worked at other jobs since 1982..
     
  10. Linda920

    Linda920 New Member

    I run a mapping department for a government agency. I struggled for a year with MM before having a gent injection. Until then I kept a pillow and blanket in my office!
     
  11. swirlee

    swirlee New Member

    The tiredness feels like it takes over. I have to fall asleep after everyone leaeves in the morining.
    Is there anyone with a legal career out there?
     
  12. Red Barchetta

    Red Barchetta New Member

    I was actually collecting disability for a differant condition before MM hit...

    However - then I was repairing, upgrading, and building PCs on the side...Not just Windows based systems either, all differant flavors of Linux, and some other operating systems (the OS makes absolutely no differance to me - if it's one I never dealt with before, it might take me a little longer to figure out how to configure everything - but I never have refused a job based on the OS the guy wanted to use in that machine).
    I did a while ago stop doing that for a short period of time (about 2 months or so) - but am doing it all again - the only differance is that now I don't really want to take anything that is "time critical". By that I mean, if it's a big job that absolutely must be compleated in 3 days, ods are I will advise them to get someone else to do it (I use to not care, and sometimes will still take rush jobs - just not very often, and it also depends on what needs to be done, how much I know about that, exc.) - but anything not time critical, I will take without thinking twice about it.
     
  13. boxer1974

    boxer1974 New Member

    i work on the electricity supply network.eveything i do is done live which can be a bit interesting.i dont think theres any job that cant be done if you have menieres,you just need to find an understanding boss
     
  14. Genesis74

    Genesis74 New Member

    I am also an opertating room nurse. Newly dx as well. I am attempting to retun next week. I have been off of work for close to a month. Not to sure about it. But will try.
     
  15. poppaharley

    poppaharley Meniere's: God's answer to a free merry-go-round

    I am "officially retired" but unofficially I'm still working too many days a week as an R&D engineering program manager. Anything more than three days a week is "too many", especially during golf season. It can be a pretty pressure packed job, but the fact that I'm "retired" sort of gives me a better "attitude"..... (although some there would probably more likely call it a "piss poor attitude".) Hope that didn't offend too many.

    I've tried to explain to "the powers that be" that I don't want to do the "tight schedule insufficient budget" jobs anymore, but sometimes it happens. Still (especially since being diagnosed with MM) when 4:30 comes, I'm out the door and you won't see me in the office on weekends anymore. I figure, what are they going to do.... fire me? My boss keeps saying he wants me here as much as possible. Maybe he's a masochist. If you can keep a regular schedule and not get run down, it will be helpful in managing your symptoms. Stress can be a trigger.

    My co-workers know of my condition and my need to close the door occasionally, shut off the phone, and meditate for a bit. I've had several attacks at work and I think it creeps people out and they keep wanting to call in an emergency, but I think most of them know that unless I tell them to call 911......just let it ride. I think it's important that your employer know of your limitations and understand what can happen sometimes so that they don't think your drunk or on drugs or something. There have been people on this site that say that they have had that sort of reaction from their employer. My company knows now that I won't do airplane trips or overnight trips in general anymore. Let the young bucks earn their feathers fighting their way through airports and rush hour traffic.

    Good luck. It would be good if you can keep working if you want to, especially in this current economic environment.

    Tony
     
  16. rose

    rose New Member

    I am a paralegal specialist. I feel I am one of the real lucky ones of the bunch here, as I haven't had any vertigo attacks in the last 10 years or so, and don't even get dizzy that often. I have only lost much of my hearing in my left ear and hear the occasional ring. The constant buzzing noise has gone down quite a bit since I started my low-sodium diet. This time of the year is tough though, but I'll try my best. Hang in there and take it one day at a time.
     
  17. lms

    lms DON'T EVER LET THE MUSIC END!

    GOOD QUESTION?? I was a reservation agent and then a billing specialist for a major health care company when I was diagnosed in Sept. I was told to find a new Career.
     
  18. nome

    nome New Member

    I am a third grade teacher. I have a plan for when I need help and a great support system. And I am very open and honest with my students and parents!!!
     
  19. DrDeb

    DrDeb New Member

    Thank you, Omegaman, for making me laugh out loud!! Seriously, I had to tell my husband about your posting. One of the things I do when I am not having a good day and the tendency to let a little bit of feeling sorry for myself starts to creep in is that I try to joke about the careers that I DON'T have which would be impossible with Meniere's - I hadn't thought of the Tilt-a-Whirl in decades! It amazes me now that I never had any dizziness, motion sickness, seasickness, etc. in my life - I actually liked that Tilt-a-Whirl when I was about 13!! So I'll add that occupation to my list which includes Cirque du Soleil artist, piano tuner, gymnast, orchestra conductor, race car driver...
    BTW, I'm a psychologist; thankfully, my butt is usually grounded in a chair no matter how I feel.
     
  20. jim1884again

    jim1884again advocating baldness be recognized as a disability

    I am a hit man so I only work 3 or 4 days a year--the people who give me contracts are all very understanding and they know if I am dizzy it may take me a couple of extra days to perform the hit--as long as they get a body, they don't care how long it takes

    actually, I have had MM about 20 years, am bilateral, have severe hearing loss in both ears and have worked (in public education) full time until I retired in '03 and half time since then

    keep at it as long as you can

    good luck
     

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