Just would like to hear from others what comments they have received from doctors, friends, family, co-workers, etc. that show they have absolutely no understanding or caring about this damn disease. In the beginning when I hadn't yet been diagnosed, there were frequent days when my hearing would be very bad because of extreme pressure, fullness and noises in my head. One of those days, I was looking for help from a doctor and straining to hear him over the phone, and his answer to me was. "your hearing can't be that bad, because you can hear me." I wanted to punch him! Did he think I just called him up to lie about how I felt? I wanted help, but he thought I was making it up!!! I have also been told. "Don't worry, so your hearing is bad today, but it always comes back." Yeah, with killer doses of prednisone, and even then it doesn't all come back. With each episode I lose more. I'm tired of saying it because they just don't get it. How about, "I don't know why it bothers you. I've lost some hearing too. We all lose it as we get older." Of course losing some hearing and going deaf in one ear, with the possibility of going deaf in the other without heavy medications is not the same, but again they don't get it. I could go on and on. Would like to hear from others what comments they have endured.