Migraine Associated Vertigo (MAV) – Misdiagnosed as Meniere's

Discussion in 'Meniere's Disease "Database"' started by studio34, Oct 17, 2010.

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  1. studio_34

    studio_34 Guest

  2. So Cal Cyclist

    So Cal Cyclist View Askew

    Thank you LK for the informative post.
  3. Gina05

    Gina05 Guest

    larrilin, thanx, that was a great contributing to this thred.

    June, you are magnificent for putting up this topic/thread!

  4. studio_34

    studio_34 Guest

    Gang -- magnesium for migraine. We should all have a go at it and if you don't tolerate it in your gut, get it intravenously (1 g). This appears on mvertigo.org.

    This is a new paper from the science literature -- The Journal of Neural Transmission (Geneva) -- that summarises the evidence for magnesium.


    -- Hypomagnesemia is very common, occurring in about 14.5% of the general population (Schimatschek and Rempis 2001)
    -- Genetic factors are clearly operational in the susceptibility to migraine. Magnesium absorption and excretion is also influenced by genetic factors. It is possible that there is an overlap between the genetics of migraine and magnesium metabolism
    -- A magnesium load test study (Trauninger et al. 2002) revealed that greater retention of magnesium occurred in patients suffering from migraine compared to healthy controls, suggesting a systemic deficiency
    -- Serum and tissue magnesium levels do not reflect total magnesium levels
    -- If migraineurs are found to be magnesium deficient by a reliable test, they should be given oral magnesium, and if it is ineffective or not tolerated, and intravenous infusion
    -- Considering that up to 50% of patients with migraines could potentially benefit from this extremely safe and very inexpensive treatment, it should be recommended to all migraine patients
    -- The daily recommended dose is 400 mg of magnesium oxide, chelated magnesium (magnesium aspartate, diglycinate, gluconate, etc.), or another magnesium salt
    -- If the initial dose is ineffective and hypomagnesmia is strongly suspected (in addition to migraines, patient has cold extremities, premenstrual syndrome, and leg or foot muscle cramps) the dose can be doubled
    -- Dosage is limited due to side effects such as diarrhea and abdominal pain. For patients who do not tolerate or absorb oral magnesium, monthly intravenous magnesium is recommended for prophylactic migraine treatment


  5. studio_34

    studio_34 Guest

  6. Taximom5

    Taximom5 New Member

    I've been taking magnesium citrate since John of Ohio recommended it some time ago:

    My neurologist also recommended magnesium as a way to stave of migraines, along with butterbur and coenzyme Q10.
  7. So Cal Cyclist

    So Cal Cyclist View Askew

    So far it is working for me.
  8. CarolineJ.

    CarolineJ. New Member

  9. Intrepid

    Intrepid New Member

    Excellent article from our friend at mvertigo:

  10. burd

    burd New Member

    The International Headache Society (IHS) is going to publish diagnostic criteria for vestibular migraine (VM). This means that it will finally begin to become recognized by physicians and we will eventually be able to have an educated, productive conversation with physicians when we bring up the word migraine, and they won't give us "that look" when we tell them it's not about a headache.

    Some highlights from the article:

    -- vestibular migraine is one of the most common vestibular disorders affecting up to 1% of the general population (that would be over 3 million Americans)
    -- a principle aim of the definition of VM is its broad acceptance within both the vestibular and headache communities
    -- these criteria will be included in the 3rd edition of the International Classification of Headache Disorders, expected to be published in 2014
    -- there are no biological markers for vestibular migraine
    -- caloric stimulation often triggers migraine attacks within 24 hours -- this provocation is a diagnostic clue
    -- a chronic variant of VM has been reported; chronic vestibular migraine may become a formally recognised category of a revised classification

    Journal of Vestibular Research 22 (2012) 167–172

  11. burd

    burd New Member

    An excerpt from the article mentioned above pertaining to both meniere's and vestibular migraine....

    "Migraine is more common in patients with Meniere’s disease than in healthy controls. Patients with features of both Meniere’s disease and vestibular migraine have been repeatedly reported. In fact, migraine and Meniere’s disease can be inherited as a symptom cluster. Fluctuating hearing loss, tinnitus and aural pressure may occur in vestibular migraine, but hearing loss does not progress to profound levels. Similarly, migraine headaches, photophobia and even migraine auras are common during Meniere's attacks.

    The pathophysiological relationship between vestibular migraine and Meniere’s disease remains uncertain. In the first year after onset of symptoms, differentiation of vestibular migraine from Meniere’s disease may be challenging, as Meniere’s disease can be monosymptomatic with vestibular symptoms only in the early stages of the disease. When the criteria for Meniere’s disease are met, particularly hearing loss as documented by audiometry, Meniere’s disease should be diagnosed, even if migraine symptoms occur during the vestibular attacks. Only patients who have two different types of attacks, one fulfilling the criteria for vestibular migraine and the other for Meniere’s disease, should be diagnosed with the two disorders. A future revision of this classification may include a vestibular migraine/Meniere’s disease overlap syndrome."
  12. Charlotte Sue

    Charlotte Sue New Member

    What is butterbur? I have also used the John of Ohios regiment in the past -- seems to help but as you know, requires taking a s--- load of pills and can be expensive.
  13. Charlotte Sue

    Charlotte Sue New Member

    Everyone on Meniere's Talk Forum -- I am so appreciative to have found your group. After reading many posts, I realized that I may have Migraine Associated Vertigo (MAV). So surprised that out of 5 Meniere's specialist that I have seen in NYC, Los Angeles, and now Charlotte......all ENTs....no-one has mentioned this as a possibility....even though I told them that I had severe, classic Migraine headaches since age 10.

    I have classic menieres symptoms including drop attachks, vertigo, hearing loss in one ear, ringing and roaring in one ear, intense sweating, diarrhea, lengthy vomiting and brain fog. Does anyone know of a good doctor in the Carolina's or Virginia who will work with MAV and are somewhat compassionate?
  14. james

    james ''Everywhere I go there I am'' GS

    I just wrote you a reply and somehow deleted it.Here goes again.
    So glad that you found this thread,many people are misdiagnosed with MM when what they have is some type of migraine variant--Here is a link to Scott's website in case you haven't already found it.You can probably find a referral for a doctor there.


    I too told my docs of my migraine history from a very young age.Only from reading here and pursuing things with my GP,able to trial migraine meds and getting in to see a really good neurologist have I gotten relief.I am doing pretty well.
    My neuro said that drop attacks can be caused by migraine,I had 3 of them early on.
    Be aware that not all neurologists are into the mav therory--only the ones who keep really up to date.
    Good luck,
    Hope you find some relief.I'm so happy that this may point you in the right direction.


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