"Living With Meniere's"

"LIVING WITH MENIERE'S"


When the night is dark and no one's around
Why is my head so full of sound
As I lay down for a good nights sleep
I know this night will be a repeat
A hum, a roar and buzzing as well
To me a nightmare, a living hell
No way to stop the sounds I hear
For what I have they call "Meniere's"
And sounds deep within my ears

I use to pray most all the time
For God to clear this head of mine
So many years have passed on by
And many days and nights I'd cry
But still the sounds lives in my head
At times you wish that you were dead
The Doctor's give you pills to take
But most the time you lay awake
I pray to God my soul to take

Now I lay me down to sleep
But most the time I lay and weep
No one knows what it is like
Because I always look so right
I try to do the best I can
But most folks just don't understand
Some can't understand what they cannot see
And at times this causes pain for me
But I can't give up, it's my life you see

Now the early morning hours are here
And the sounds are here within my ears
But I will go and try to sleep
And pray my Lord my soul to keep
Maybe soon it will go away
Who knows? Is what the Doctor's say
I'll always thank the Lord above
For "He" understands and gives me love
I get my strength from up above

Only a person who lives with Meniere's
Or Tinnitus, the pain, the fears and tears
Can really know of what I speak
And a cure for these people is what I seek.


This is dedicated to the many thousands of people with Meniere's and Tinnitus
who hear more than they need to hear. To the families that do try to understand
and gives them hope to go on day after day, and to those who help to heal the pain that comes from having this problem. To the people that keep searching for an answer. To the people that try to bring awareness to this disease to help find a cure for all. May God bless you!


By: Gloria S.Castor

Copyright©1997 Gloria S. Castor

 

Thanks for posting this again, Sami. It's one of my favorites!

 

Sami ,
Thank you for reminding me just how cool this site is!
Hugs,
Pat

 

This is also one of my favorites from onset. Too bad we can't have it as a sticky! Thanks!

 

ditto ditto

 

Sorry I am so late is getting a thank you to all that posted replies and kind comments.....


Thank you so much to:

Linda..... :-*

Patrixie..... :-*

Headnoise.....Sherry, thank you so much for your comment! A sticky?..... :-*

Aladdin..... :-*

Love and hugs.....
Sami..... :-*

 

In a way it's a shame that people new to this forum don't start in this room. Poems like yours explain it all so well Sami.

One thing Menieres taught me with its silent suffering was how much is underneath the surface of each person.

 

Thank you Lee, for your reply, and your kind comment. You may have a point there, in regards to starting out on the forum by reading in the WD. There are so many people posting poems now, and the facts are there for sure. You are sure right about the silent suffering, and so much is done in silent. Some very good poems and stories.....thanks again for posting on mine!

If you can help just one person and they can pass it on, just think what a better world this could be.....

Best Regards.....
Sami.....

 

Me thinks you know me head - and me heart. Thanks

 

Thank you dlbach.....and love your reply.....guess many have been there. Hope all is well for you now.....

Best Regards.....
Sami.....

 

BUMP for Judy! Thank you.....

Love and hugs.....
Sami.....

 

Thank you so much for that.I've been living with this for the last 7 years.Any new solutions out there. Goldie

 

That is a very touching, moving and inspiring poem. God Bless-

 

Just want to say thank you to.....

Goldie.....Not sure where the research is at on Meniere's, but do keep reading this board for some of the best info around.

dizzy in columbus.....Thank you so much for such kind words. It means a lot when someone finds something in my poems that they can relate to.....and God bless you also.....

Love and hugs.....
Sami.....

 

Thank you Sherry! Got your PM and got a reply back to you tonight, hope you get it. Good to hear from you and hope all works out well. You may contact me anytime if you need information on your end.

Blessings to you and yours.....
Sami.....

 

wow! in tears* you hit it on the nail

 

Thank you Mrs_kamm for your kind reply. I have not been on the board as often, but sure thank you for taking the time to read and reply.

Best Regards.....
Sami.....

 

Hi Elayne, this is it!

Sorry I didn't get it up sooner.

 

Did you write that Sami? that is powerful. I truly enjoyed that.
I really appreciate poetry. It is wonderful to see someone wrte such a moving, tell it like it is, poem as this. Vey good therapy. Thank You so much for sharing. i'm2dizzy

 

Hi im2dizzy.....

Thank you so much for your kind words.....and yes, I did write this. I love poetry myself, and have been writing for years. I did my own book of poetry and sometimes post one from my book of poetry. This poem was written years back after I found out that I had MM, and tinnitus, and this is based on living with Meniere's for sure. You can also find this poem posted on the new MRI site. I was honored to have the founder of that site ask if it could be posted there. Check out Meniere's Resources, Inc, if you have not already. Headnoise, on this site is the founder, and it is a beautiful site.

Thanks again for your reply and kind words.

Best regards.....
Sami.....