Discussion in 'Your Living Room' started by Sholly, Jun 6, 2011.
Aye, that's the rub.
John do both of these two ents implement the joh regime in their practice and if so can I call them and see if they get a 90% cure rate.
Perfect testimony, give dr names and numbers and let us call to see if they use it in their practice or what their thoughts are about it.
If it has a 90% cure rate I am sure they would sponsor a clinica trial of your regiment, hell you 3 could go down in history as solving his riddle.
Joh- if you look up mm in a vitamin supplement book t gives you all the vitamins recommended for mm and it's symptoms. I know, I asked my friend here in Florida who owns a gnc shop.
It must not work as you say, because it is always being tweaked, changed, modified.
What will the 2020 version look like?
Angela is right, our only hope is for researchers to solve the riddle! My problem is after 150 years of trying how much closer are we than we were 50 years ago.
I am hoping and praying for my Aussie friends.
I'm glad you are in good health. I've noticed that it is a continuing argument amongst GPs and specialists as to the status of MD. In Australia at least. Disease or syndrome? The younger specialists, particularly, are firmly in the syndrome camp.
If your ENT's have made a certain diagnosis, then they must have found the cause. This is Nobel Prize material. But still they come.
I don't want to downplay your great work John, my belief that VMS are a good thing, and my belief that MD has a viral cause, but have you ever considered that your long period of good health may be a remission? There are plenty of documented cases where people have ended up in your situation with no treatment at all.
I believe that if you could use the data that you have collected, that if you could find an interested party to commission some proper trials of your regimen, some interesting questions could be answered.
Fact is joh is completely deaf in his mm ear and maybe his vertigo burned out.
Aka: just like Wino burned out over 20 years ago? without intervention?
does great work and I applaud him as well.
Joh:I believe it is viral as well.
Be good my friend.
Yes, in 2002, after about 2 yrs of complete relief I felt no need to take the whole regimen any longer, so I went off the lemon bioflavonoid and the lysine, intending to taper off the whole mess of daily tablets and softgels. Mistake. MM symptoms returned. Went back on the full regimen and have remained free of symptoms since, although I have discovered that (for me, not all) all of the regimen elements taken with a 500 mg daily maintenance dose have kept me symptom free since 2002.
I have a good number of reports from others on the regimen who encountered exactly the same thing, where they got welcome relief from the regiimen and then on the basis of that went off the regimen only to have symptoms return. Then, as in my personal case, these people resumed the regimen and symptoms once again subsided.
That's about as clear a proof as any that it was the regimen, solely, that provided the symptomatic relief.
And that is "the rub," the proof that the elements of the regimen are directly responsible for the symptomatic relief it brings.
--John of Ohio
I don't know what you guys translate 'rub' as.
My intent was 'That's the problem', 'That's the dilemma', 'That's the rub'.
I know you do not seek adulation or recognition, but you have to do something better than 'a good number of reports', 'dozens upon dozens', '95% success rate' to stem these queries.
You have obviously put a lot of time and research into your regimen. Why don't you go the extra mile (perhaps with assistance from forum members) to compile some meaningful data? The regimen would benefit with the application of some scientific scrutiny, or just some accurate figures, taken over a decent timeline.
Why not? Why isn't it possible that someone without an MD might be able to see something that someone with an MD doesn't? Especially when that someone has their own health at stake?
History is full of examples of people who have gone against the medical status quo, and were right when everyone else was wrong, including Ignaz Semmelweis (who, yes, did have an MD).
I totally agree with you!
There is no flip flopping,
he is a good person, trying to bring relief and I applaud that, but he is not a medical dr with absolutely no medical experience and makes claims of a 90 % cure rate.
I got a vitammin regime in my back pocket, you should try, it cures mav, I know because it worked for me and I have some testimonials to prove it.
To be, or not to be: that is the question:
Whether 'tis nobler in the mind to suffer
The slings and arrows of outrageous fortune,
Or to take arms against a sea of troubles,
And by opposing end them. To die: to sleep;
No more; and by a sleep to say we end
The heart-ache, and the thousand natural shocks
That flesh is heir to, 'tis a consummation
Devoutly to be wish'd. To die, to sleep;
To sleep: perchance to dream: aye, there's the rub;
For in that sleep of death what dreams may come,
When we have shuffled off this mortal coil,
Must give us pause: there's the respect
That makes calamity of so long life...
Would your two ent's be willing to prescibed the regime to their mm patients over a couse of time and provide feedback to you from their patients and possible write a report up for you.
I would be delighted to cooperate with any clinic or clinician willing to conduct a multi-year trial of my regimen for diagnosed Meniere's presentations. Please forward to me any that you know of with such an interest. In initial response I'll forward to the professional a copy of the over 230 personal accounts from regimen users I have.
I would be delighted have the regimen statistically matched against patients with Meniere's being treated with conventional therapies such as low salt/duretic or valium as the controls.
But of course, there will be a number of difficulties in getting this done, not the least of which is funding. I have none, and no pharmaceutical company is going to spend large funds to authenticate a treatment therapy with limited users and in the public domain without patent protection.
Any suggestions on how a proper trial could be conducted? I'll cooperate in any way possible.
--John of Ohio
"Because we still don't know the cause of MD, it remains a syndrome, rather than a disease. Where people have discovered the cause of their individual symptoms, they were lucky enough not to have MD. They had some other condition that was compromising the auditory or vestibular system."
Have to disagree Chris, Like JOH I was diagnosed with MD and thanks to JOH I discovered that my MD was brought on by the herpes virus. After continuously taking Llysine my symptoms are now controlled. I still have MD ( and not some other condition ) the only difference is that I control it and it doesn't control me.
You are a lucky man then.
would your dr give you an antiviral like acyclovir rather than lysine?
Or is lysine more potent than acyclovir
Absolutely! I don't disagree with TM or Intrepid at all.
It is just that some of the commentators here who will go unnamed come across to me as if they believe they know more than the researchers and have it all figured out. My comments were directed to that assumption.
I agree with JOH's conclusion and I believe his regimen works for many people (though ya' all know I'd prefer to hedge my bets with acyclovir or Famvir - but I know that is not an option for everyone so thanks to JOH for an alternative).
If you go herpes websites, people in fact post that l-lysine often, though not always, works to shorten the length of an outbreak. I also find it too coincidental that many of the triggers for known herpes outbreaks mirror those many people with MM have observed.
But there is still a lot of mystery behind the herpes viruses. Why do some people get shingles and some don't? How does it lay dormant for dozens of years and then suddenly wake up? Stress, both physical and emotional, have been implicated. But there are still a lot of unknowns. And this is a fairly well-researched, common condition, unlike MM.