I have had MD for3 yrs now and have only really had 1 BAD event. But what I am realizing is that I really don't know more then just the basics of what's in the books. But what I am seeing is that people experience more then "what's in the books." I'm taking dyazide and between that and diet things have worked well till recently. My MD affects both ears but the right more then left. And awhile back I developed right sinus/discomfort around the eye. The right side of my face even drooped a little. It looked like Bell's palsy but it wasn't. My doc did an MRI just to check things out and it was ok. Then I did some steroids.... Which did help the discomfort. But it didn't go fully away. So I did start a gluten free diet. But low and behold an attack..... So I'm just wondering if anyone has had similar experiences? Would anyone feel free to share all their symptoms? Thanks in advance!
I think MM can be an umbrella that covers many symptoms. My experience with the medical profession is that they don't really have much of a clue about this disease. Some people have total hearing loss, some don't, some have dizziness all day every day, some only have attacks. I had no idea about the range until I found it here. I have total deafness in one ear and mild chronic vertigo and ringing. I could lose the hearing in the other ear or no. Noone knows. The hard part about this illness is accepting what it really is. I have finally accepted it totally which took me a very long time but I am at peace now. Unfortunately, it is degenerative which most doctors don't like to tell you. Good luck and keep track of what is happening to you. This site is the best resource so far for me, and I had this illness for most of my life!
Hi abroxter ... welcome to the forum Medical questions will get more answers when posted in the Living Room section of the site. Here in the Front Porch section it is more for fun and things unrelated to the medical side.
Thank you so much Caroline...... I am so happy I ran into the this site because right now what I'm going throw I feel like I am lost. I am going to go see my ENT on Monday but I have a feeling that it is going to be non-productive. But I'm glad to also know that I'm not loosing my mind with what I'm experiencing. Lol. Thank you so very much for taking the time to give me feedback. Artlover.... Thanks for the heads up. . That was my intent....but obviously that didn't work. Since I'm new maybe the next one will go better.
What kind of specialist have you consulted? When you say it looked like Bells Palsy but wasn't what exactly do you mean? A number of people here have found relief from taking antivirals (famvir etc). Bells Palsy is sometimes treated successfully with antivirals. So taking the two together I wondered if you might want to talk to the dr about giving antivirals a try. But in any event, if you have not consulted a neurotologist (inner ear specialist) I think it would be a good idea, especially since you say it affects both ears. Good luck! Let us know what you fin out.
My face looked liked side of my face drooped/did move as well as the other. I could move it, but I could feel discomfort and something wasn't right. The combo I had taken in the past was vit c/ L lysine/antihistamine/vit e and I think one other thing and I laid off of it (except the antihistamine) cause I was doing well and wasn't sure that was really helping. Lol.... . Now I'm in this situation. I think if nothing else I will be going back on the L lysine. The only specialist I have seen is ENT. Where I live we do not have a large spectrum of those type of specialists. But an antiviral is a good thought to entertain.
There is a lot of infor on antivirals on this board and also the database board. You might wnt to check out the thread 'Success Stories' on the DB board too.
