Doctors you would recommend in your area.

Discussion in 'Meniere's Disease "Database"' started by Buffy-Again, Feb 6, 2008.

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  1. Hollykins2

    Hollykins2 I have nothing cute or entertaining to put here...

     
  2. fifferfrog

    fifferfrog New Member

    I live in the North Dallas, TX area and would highly recommend Dr. Neelesh Mehendale, MD he is an ENT at ENT Tex who is VERY knowledgeable about Meniere's and is very understanding. I've got a lot of faith in him.
     
  3. barnyardbird

    barnyardbird Guest

    Dr.Diturro at Kaiser Permanente.
     
  4. SMRoz

    SMRoz Coast Guard Dizzy! (Ret)

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    Any doctors at MEI is a good choice. I see Dr. Lauroure and he is great. I have heard nothing but good things.
     
  5. crazydevilsgirl

    crazydevilsgirl My baby girl and me!

    :) Highly recommend Dr Artz at Thomas Jefferson Hospital in Philadelphia PA. :)

    I was seeing a very good ENT in Central NJ near Princeton, Dr Boozan, and after a few years of treating me and realized that surgery might have to be the next step. So he sent me over to Dr Artz at Jefferson and I liked him a lot but after doing some research I wanted to skip the sac decompression surgery and move on to something that wasn't considered a placebo surgery. Since I'm lucky enough to live between Philly and NYC, I decided to get a follow-up in NYC and see what the doctors there thought. I went to New York Presbyterian Hospital, and the doctor was much older (ok he had the big silver cyclops eye on his head, took everything I had to not laugh in his face when he pulled it down to look at me) and agree I had meniere's disease but want to use shunt in the surgery. I was told that it was 50-50 chance that it might work, and there is a higher risk of infection with the shunt than without. All the research I have done suggested the same, several members of my family work in the medical field, so I had some solid resources. Not meaning to put down NY Presbyterian Hospital they are amazing, but Jefferson had the better doctor for my condition.

    Dr Artz, had his own spin on how he does the surgery, and that it changed the success rate to average 70-30 chance. What really amazed me was how involved Dr Artz was, he answered every little question I had, I did not feel rushed or that there was a topic I couldn’t address with him. In fact I had concerns about my treatment because I also suffer from Bipolar Disorder, and he contacted my psychiatrist personally and had a conference call with me during an office visit so that they could deal with any possible complications and answer any questions and concerns I had, as well as they had for each other.
    I was even more impressed the day before the surgery when Dr Artz (not his staff) called me to see how I was doing, if I was nervous, if I had any concerns or questions about anything. He also came and saw me twice before I went into surgery. First he came to introduce himself to my family before the surgery and answer any of their questions and the second time just before I went into surgery to see how I was doing. I also received a call from him a few days after I got home to see how I was doing. I was and am still extremely impressed with him and his staff, and feel lucky to have found them (thanks to Dr Boozan).
     
  6. Oljanna

    Oljanna New Member

    This is the list of my recommended Doctors in Hamburg and other parts of Germany:

    Northern Germany:

    Dr. Wucherpfennig as a normal Ent. He will tryout and rule out everything that is nescessairy before diagnosing Meniere.
    Dr. Külkens (Hamburg) for Gentamycin- and Cortisone-Treatments. He works with the low-dosed-protocol from the Ent-clinic Mainz.

    Mid Germany:
    Dr. Schaaf (Bad Arolsen) specialist on Meniere, Gentamycin and the psychological side of it.
    Dr. Di Martino (Bremen) as a specialist on Balance disorders and Cochlea Implants and for shunt surgeries.
    University Clinic Mainz

    South Germany:
    Dr. Golenhofen (Prien / Munich) as a wholistic specialist on tinitus and meniere, very varied interest in MM, TCM, cranio disorders etc. You can get a Labyrinthanesthesia there.
     
  7. spinnyandringy

    spinnyandringy New Member

    Is there a way to see replies just in your area or do I have to look through all the replies to find a doc in my area?
     
  8. amberini

    amberini New Member

    Spinny, best to start your own thread and ask for a doctor in your area specifically.

    Just write "seeking a doctor in ______". Ask for patient experiences, too.
     
  9. Snaike

    Snaike I am a work in progress.... and it's break time.

    Hello all.. still very new at this so please forgive the occasional faux pas and ignore the blinding speed at which I can insert my Florsheim's into my oral cavity.... ;)

    I am in the San Francisco area and am bound to the Kaiser Permanente system. I was dx'd with MM last July and told by the "personality-free" ENT on site that I needed to "learn to live with it." He was nice enough to order an MRI and hand me a couple hundred low-dose diuretics, but other than that they (he and the PCP) have done nothing of any help.

    Well, I'm tired of 'learning to live with it' and wish to pursue alternative, aggressive, challenging protocols to alleviate the symptoms of MM.

    While I am shopping for a more open-minded PCP in the Kaiser system, does anyone know of a good ENT in the SF area connected to Kaiser?

    Thanks for any responses. Sorry to be long-winded.

    Peace
     
  10. dizzyallthetime

    dizzyallthetime New Member

    Any Dr's in Ohio good ? I live 70 miles from Cleveland and 70 miles from Columbus .
     
  11. chill1479

    chill1479 New Member

    How about a good dr in Grand Rapids MI?
     
  12. carolyn33

    carolyn33 New Member

    Sorry I didn't have MM when I lived up there, have you tried the Cleveland Clinic? an OTO not an ENT?
     
  13. CarolineJ.

    CarolineJ. New Member

    Sue, where in Canada are you?

    You need to search out a NeurOTOlogist. Not easy to do in Canada as there doesn't seem to be a listing of them.
     
  14. SMRoz

    SMRoz Coast Guard Dizzy! (Ret)

    I live in Charlevoix (4 hours north) and all my doctors send me to the Michigan Ear Institute. They say they are the best in the state and some of the best in the country. I have had good results with them and they seem to know what they are talking about. I keep making a 4 hour drive to see them.
     
  15. CarolineJ.

    CarolineJ. New Member

    bump for FrenchMonkey
     
  16. LaurieO

    LaurieO New Member

    Having such infrequent posts tells me that there are not enough doctors that our members can recommend . . . oh my
     
  17. SMRoz

    SMRoz Coast Guard Dizzy! (Ret)

    Laruie i think its tough. Our illness has so many variables and so many questions that our doctors just don't know what to do. I drive 4 hours to mine and by this point I am out the door in 10 min with him saying. "Stay on low salt, exercise and keep out of stressful situataions".
     
  18. lulu48

    lulu48 New Member

    If anyone lives near Cincinnati I highly recommend my Neurologist, Dr. Myles Pensak. He is at the UC Health Medical Arts Building.
     
  19. Rubiegem8280

    Rubiegem8280 Trying to get my world to Stop Revolving Around Me

    I know nearly all the remarks on MEI have been really good but I had a horrid experience there in June. The audiology department in particular. I had a vertigo attack while in testing. The audiologist ignored it. I was wretching and trying to find a floor, a wall, something...... and she just told me to wait it out and move on with the tests. Then when the results weren't making sense to her, she blames the equipment, changes rooms and starts over. Never wrote any of the results down, never mentioned my attack, or my lack of hearing tones or word recognition or the pain she caused me. Told me during the tests I had a weird result in one ear (cochlear something or other) and then after 4 hrs sent me back to the doctor with notes saying there was nothing wrong with my ears and to send me for a psych consult. To which the doctor did not question me at all, but begins telling me I must have a conversion disorder, which is good cause I could get my hearing back with a good therapist. But not to bother ENT's anymore. I was still spinning at that point and had no clue what was really going on with me... It was a 4 hr drive for me to get to this appointment in the first place (my aunt drove). The attack lasted a week. According to my ENT up here, who is really upset over that, it was a classic menieres episode and would have been the perfect proof had the audiologist gotten her head out of her *** and paid attention to me, the patient who was in tears trying to get help.

    Long story short, with my insurance and location, I have to go back there to follow up on my dx because there is no one he trusts up here. He and I agree it is time to be proactive in treating the attacks but we need a specialist. When their office called to make my appointment MEI said there were only three doctors treating Menieres.... and Rauch was not one they listed.... I refused to go back to the one I saw before.... They have me in (in 2 months) to a Doctor Smullen. Anyone heard of her?
     
  20. kysaintsfan

    kysaintsfan New Member

    Hello all! Please forgive me I am new to the boards. I live in Louisville, KY and was diagnosed in the ER (of all places). My right ear was the affected one at this point. I grew up with the ringing and in 1991 it came and decided to stay FOREVER! In 1996 I had my first vertigo attack which took me to the ER and my diagnosis. I did not have another vertigo attack until 2005. We have no insurance and my husband is self employed. In 2005 the attacks came with a vengeance and occur quite frequently. We go to our local health clinic for our medical issues and since 2006 they have put in a referral to University of Louisville's ENT Clinic. I have not gotten an appt. yet. They have of course repeated the referral several times since. My primary Dr. at the clinic has me on Musinex and Allegra daily and phenergan(spelling)and meclazyne (spelling) to help attacks (laughs). In 2005 it began in my right ear. I am so frustrated. I do the low sodium and have tried many things (all info has come from the internet). It is so aggravation because people and doctors seem to not understand the enormity of trying to live with Meniere's. So I suppose I will just wait and pray. I did apply for disability (the insurance would be a Godsend) but was denied because my dizzy spells (their words) should not keep me from working. I have honestly never been so insulted in my life. my (dizzy spells grrrr) sometimes keeps me from living!! Thanks to everyone and I look forward to being a member of this community! Sorry for the rant just venting to people just like me for the first time in my life!
     

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