Do people leave when they get better?

acujen - YUP *knock on wood!* Hopkins developed a low dose option which require usually only one or two doses, and I was having attacks every 2-3 days prior to the shot.

 

Wanted to bump this up, as I'd like to hear more success stories!! I'm starting to get freaked out by all the recent doom and gloom posts.

 

A,

Ignore those gloomy posts, they will get you no where but down.

I have had wonderful success with Dex injections but to be fair, I do have Auto immune issues and steroids have saved my life and my hearing.
This year I decided it would be the year of doing things differently and so far, wonderful results.
My hearing test last month shows it's the best in 5 years.
I still have some dizziness, I will most likely always have some dizziness.

This year I:
modified my diet to exclude all grains, dairy and coffee
Nucca
Low Dose Naltrexone
Joined a gym
Supplements



Don't forget, a big part of this illness is stress. You can control what you read, so don't read the posts that stress you out. Makes for a quick trip to .org these days...

 

I pop in every once in a while. I'm feeling great, still have tinnitus and hearing loss in my right ear, but the Effexor game me my life back.

 

Effexor? The antidepressant? It stopped your vertigo??

 

I was having MAV - and yes it helped me tremendously.

 

Antidepressants are one route among many to try i getting MAV under control. Have you tried any of them?

 

i'm anxious to be able to post a sucess story i have come and gone off of this board because i wasn't sure if i had meniere's or not but i like to talk to everyone here esp since dr suspected meniere's last time. Gonna try to find something to help. been sick for about 5 weeks straight off and on every day.

 

You know it could be something else entirely.

I know you have been under tremendous stress. It's just a thought...

 

I'm still here and Lord willing I'll be here for the duration.

Bless you, Jen. And bless everyone here.

 

Henry, you found success with NUCCA, right? And Amberini, I have never tried an antidepressant because I'm not depressed. But, if it would stop vertigo I'd be willing to give it a go! Maggie, can you PM me with a little of your story? (Or post it for everyone.)

 

That's right, Jen.

 

I had my VNS in 1999 and consider myself cured, yet I am here often. This board helped save me, I was so lost and knew nothing about MM. I was DX'd before the internet, so when it did come around I found this place and have been here ever since.

I must admit that it is hard to come by here at times, there is so much suffering from those who have not been as lucky as I have been.

But I truly am a success story, since my surgery I've bought a motorcycle, been on numerous crusies, including Tahiti where we scuba dived wtih Manta Rays and sharks, have done tons of other travel, and I'm getting married one month from today!

So don't ever give up!

 

I originally used antidepressants for chronic pain issues. I started with Zoloft which is often the first prescribed for MAV treatments. I didn't make it a month before having to stop.
Then Prozac, I flat lined, no emotion at all. Then Effexor and that did make a difference, so I stayed on that one for a good while until side effects and I tapered but that itself was a wicked experience.
Serzone, omg, had to stop quickly.

I restarted after a while but another problem, so stopped and gave up.
A couple of years later, Cymbalta and things were good...for a while but ran into the same problem as before, so I tapered off and said enough.
Then came Lyrica, different type drug but still used for Chronic pain. At that time, I had all the MAV symptoms. Lyrica did calm everything for me, my vision, nausea, headache, all settled down. I was able to continue taking it until late last year. I stopped because it no longer helped with pain or sleep.
However, if I were to develop those symptoms again, I would take it again.

The answer is that class of drugs (AD) are often used off label for many other conditions, not just depression. Having said that, it's not unusual for depression to accompany health problems.
Eventually, they join to make a vicious circle where you don't know where one begins and the other ends. I believe that must be one of Dante's circles.

I am not the typical antidepressant patient, most aren't nearly as sensitive as I seem to be so don't use this as gospel regarding those drugs.

Many of us continue to look for "THE" cure but so often it helps one and eludes the next person. I can only say we are all on this road but in different locations. The treatments I have done, the therapies I have tried, the adjustments I have made, all happened just the way they were intended to and I learned so much from each of them. Had I done any of them in a different order, I don't know where I might be today.

We learn so much from having a health issue as incredible as it may sound, I doubt I would change a thing. Not saying that I like having these health issues but by having them, I have grown. It's sort of like I pushed through a heavy curtain and am on the other side looking back but also able to look forward without dread.

Acujen, you do know that Dr. Hain does phone consults, don't you? Granted it's probably not a reimbursable insurance claim, but he is one of "the" MAV doc's and so I hear, gives you a plan for you to take to your primary and work from there.
It's just another idea. A few on .org have used him, if you make a thread about it, they would probably respond to your questions.

It does bother me to see so many people suffer because they do not have access to qualified medical professionals in there area. To be fair to the medical world, this whole MM/MAV thing is very complicated and confusing and very often the symptoms we describe mimic other diseases.

It's easy to get an idea in our head and convince ourselves of it's validity. I have been down that road a few times myself. But, once again, there is good things to learn from that exercise in futility. That is where I found answers by blending allopathic and alternative medicine. Even my Cardiologist thought this was the best answer for me but it took years and tears before I figured it out and then found practitioners that I could work with instead of just being told what to do. I am the key person on this "team". They understand my position in my own health care. Like I said, it's been a journey.

 

Hank/Henry,

Good sense of humour.

 

Chrisk, I wish you would post more often!! Your story is wonderful! Just the kind of thing I need to read, as I get really freaked out with all the "what ifs". Thanks for sharing that. And, CONGRATS on your impending marriage.

Amberlini...wow, what a journey you have been on. You're in inspiration....reminding us all to never give up! P.S. I'm an alternative medical provider, so I was happy to hear your validation of it's importance in your treatment.

 

I had a bad time with what was unofficially diagnosed as Menieres in 2004/05 but then started to get it under control with cranial osteopathy. I now think my symptoms come from my neck and am waiting until I get health insurance sorted (I've just moved to the USA from England) then I will pursue NUCCA as I think that will really sort me out. I will be using HenrySullivan's specialist as I live in the same area as he does which is fantastic as I was able to get Hank to validate the specialist and tell me how good he is. I don't post as much as I did not because I am better but because I got lured away by Facebook! I have quite a few members of this forum as friends on there. However I realise that I ought to post here more to be there for friends and new friends that are here.

 

Jen, I think that is a great question. I have been pretty much symptom free for several months now but keep coming back mostly to see if anyone else is trying the Vitamin C mega-dose. It has certainly changed my life. But honestly, I see how it would be easy to get back into a "normal life" and stay away from here. I am sure no one intends to do it but it kinda happens.

Debbie

 

Debbie, what's the "mega-dose" that worked for you?

 

jen,

Here is a link regarding vit C. Debbie's story is on there also.

http://www.menieres.org/forum/index.php/topic,28889.0.html