I have applied to the Secretary of State in Missouri for a registered name for a Meniere's non profit organization - purpose is for education and also eventually to establish an assisted living facility. The ByLaws and Articles of Incorporation are in rough draft stage. Officers and board members are coming together. A resource manual needs to be compiled explaining all the aspects of diff vestibular diseases, symptoms, diff between vertigo, dizziness, disequilibrium; treatments, triggers, psychological effects, how to apply & get SSD, insurance & legal issues, working on the job with MM, and a thousand other things. I know a lot of you have information, files of information. I need people to contribute chapters of your choice (with some organization and coordination of course) to this book which may end up being the size of a large telephone book. The book will be used for both MM, BPPV, SCD, MAV, etc sufferers and also for a guidebook in educating volunteers and staff who would work to establish this assisted living facility. Ex: acoustics, lighting, diet - all issues in this facility that are unique to Menieres et al and would have to be addressed before the facility would be satisfactory. It can't just be another tile and fluorescent lit nursing home!!! Can you see the issues here? If you feel inspired to help with this - a long term project, WE NEED YOU! Everybody has knowledge about different things. I've not applied for SSD, I wouldn't know a thing about writing about it. I have a cochlear implant, I could write about that whereas others of you could not. So each person here has an experience or an area of "expertise" that could contribute to this manual. I foresee a website of material - brochures, books, DVDs and videos also developed. Non MM people are welcome to write - coping as a family, etc. MM and raising children, or having a parent with MM. Please help us make a difference here - many people spent decades without support in the past. The computer & internet has made it possible that for future sufferers, we can make life much better. There must be some reason we are all here, keep struggling along together, gleaning support and encouragement from one another. Let's pass it along!