Back--just been 'browsing' here lately. Feel overwhelmed, decided to post :(

Discussion in 'Your Living Room' started by yanksgirl, Apr 26, 2014.

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  1. yanksgirl

    yanksgirl New Member

    :(Well, I feel really like a 'whiner' when I see how badly many of you are suffering--and so have just been browsing lately.
    I saw my Neuro/ent this week. Told him I had given AV's a try--Dr. Gacek's formula, and it didn't work. Really had hoped to be able to tell him it had! He didn't seem unhappy that I'd gone around him--as he had told me to do what I felt I needed to do. So, as I said, got my primary to agree (reluctantly) to prescribe them for me.
    Anyway, my hearing tested close to the same--and since my shunt surgery 2 years ago, except for a few very mild 'feeling that vertigo might be coming on', I've had 'no vertigo! He told me I 'will not have it anymore'!
    That was encouraging. He did say that my ongoing head pressure, nausea and dizziness is not that common, but some of his patients--very few do deal with that. Said I had a 'sick inner ear'. I told him I tried the Valium for a couple weeks at bedtime as he has prescribed in the past. No help.
    Also that I take Xanax 2 times daily for the anxiety this causes.
    That's my problem--now I'm wondering if my body is even beginning to have bad affects from it--as I'm nauseated daily, from mild to intense. And the ongoing head fullness/pressure, never ends when I'm upright! I keep on going, feel like having a good cry--several times a day and give in to that on occasion, but try not to do so too often. So, I read the posts here and realize my symptoms are so minor than so many here. But I have to tell you, when you're dizzy/nauseated and that makes you feel like you have brain fog and you just wonder, 'is this ever going to be better'? You do get 'down' for sure. So there--I've sounded off! That's what this board is so good for. No one else understands, though I have a supportive spouse and family, they just don't understand, nor do really close friends. I 'look ok' so folks assume--as you all know--that we are, when we really are not! Thanks for listening! :)
  2. KennedyLane

    KennedyLane New Member

    Sorry, Yanksgirl. I feel so bad for you. Do you have a history of migraines?
  3. yanksgirl

    yanksgirl New Member

    When I was younger--very bad. I was told some of my issues may be 'silent migraine syndrome'. Meaning all the symptoms of Migraine but the pain! No fun! But I didn't have migraines daily, so the fact that I have this daily makes me wonder if that is the cause. Anyway, thanks :)
  4. Vicki615

    Vicki615 New Member

    sorry yanksgirl I wish you to feel better, have you tried the MAV diet? and read through the MAV thread in the database? Maybe something there might help.
  5. CarolineJ.

    CarolineJ. New Member

    Hugs Yanksgirl xx

    I wonder if a Chronic Disease Psychologist can help you with some of the peripheral problems caused by your symptoms? May be worth a visit.
  6. Gracie

    Gracie New Member

    I hope you get around to feeling better. I know it sucks.
  7. yanksgirl

    yanksgirl New Member

    Most of us here have anxiety. And or depression too. Most take meds of some kind, but I can't
    Tolerate side effects of those I have tried. And only, xanax so far.
    So I have seen a Dr. But this is just something I have to deal with. Gets to me, but I keep on keeping on. Thx
  8. CarolineJ.

    CarolineJ. New Member

    Yanks ... a psychologist doesn't prescribe meds. They work on other aspects of dealing with things ( therapy ) so that is why I thought it might be worth a visit for you. :)
  9. Juz

    Juz New Member

    I also suffer from some pretty horrendous anxiety, and seem to focus much of it on my general health. Since developing MM I've become a bit of a hypochondriac.

    I too would recommend a psychologist specialising in chronic illness. If you find the right one and have a good rapport, you can gain a great deal.

    I really hope you feel better soon. : )
  10. rondrums

    rondrums Bilateral

    Yanksgirl, how long have you been taking Xanax, and what is your daily dosage?

    I started on the stuff 9 years ago when I first got the Meniere's diagnosis--low dosage, .25 mg. twice a day. After several years, it became obvious that I needed to increase the dosage. This is the nature of an addictive drug: increasing tolerance. I bumped it up to 3 a day, and since I've gone bilateral, 4 a day. I keep trying to hold down the dosage, but there's no point.

    My neurologist prescribes it, and he keeps telling me I don't take enough. He has patients who actually take 4 to 6 full milligrams a day! I can't imagine how they function.

    Anyway, a dosage increase may help you. It really does suppress the balance nerve, and obviously, it helps with the constant anxiety.

    Bless all,
  11. yanksgirl

    yanksgirl New Member

    Yes, I know some days I need the 2 1/2 dosage and can take 3 a day but have tried so hard not to and maybe that is my problem!
    So glad It helps you--I do understand
  12. yanksgirl

    yanksgirl New Member

    Yes, I know a Psychologist doesn't prescribe meds. I have seen a Psychiatrist--just for that as my primary felt he would be able to find the right dosage. I tried about 3 and couldn't tolerate them, so he advised the Xanax--spread out in 1/2 doses over the day. Haven't seen him in quite awhile--may go back to discuss trying another anti-dep. Also I do see a very good therapist who has helped me a lot--just can't go all the time for sure. thanks everyone.
  13. dizzybee

    dizzybee New Member

    Yanksgirl, I know exactly what you're going through. I too have constant pressure in my head and a constant off balance feeling. Have anxiety but no real MM symptoms. Completely pissing me off. And true, it's not nearly as bad as what others with MM symptoms go through but still scary, frustrating and hopeless, nonetheless. I've been to a neorologist, he put me on a med for migraine and I too have difficulty with meds - they tend to make my anxiety worse. I now have pain in my left ear, not really pressure, just straight up pain. I'm so confused at this point. Hang in there and know that there is someone else going through the exact same thing as you. I picked up the book Heal Your Headache and it looks promising. I too cry like at least once a day....just pure exhaustion from all this. I start therapy this Wednesday so hopefully that'll make a difference. It certainly won't hurt talking to a professional :) I'm sorry Yanksgirl, this sucks. All of us just want to be normal again and when you try so hard but still can't fix the problem (or even find out what the problem is) frustration and hopelessness set in. You're not alone hun, remember that. If you ever wanna talk you can reach me here :)

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