A Message To Those Who Accuse Me Of "Bashing"

Discussion in 'Your Living Room' started by nassman, Jan 29, 2007.

ATTN: Our forums have moved here! You can still read these forums but if you'd like to participate, mosey on over to the new location.

  1. LisaB

    LisaB New Member

    I agree with Nursemom (Di) that valium has been a godsend for me. I'm glad I didn't read some of the above posts suggesting you will get addicted.....they would have made what my doc said (and what worked for me) very scary. I have used 5mg a day for 3x a day for weeks sometimes. But overall rarely. I did not become addicted. I headed my doc's warning about it. And yet, when I needed to it was great to have. This forum should not scare people. It should suggest that maybe they want to take a look/see and I do agree that it should be stated as "this is only my opinion and what worked for me" format. If you haven't used valium doesn't it make sense not to offer too much of an opinon about it besides general info? I sure don't like the threads where people go at each other. If anyone is starting to do that, that is not the reason for the forum. I don't think anyone here is afraid of an opposite opinion, and looks forward to the debate of a drug or subject, but delivery is as much as the message. Also, many of us experience MM in very different ways. It cracks me up when people make statemnst like......if this is you you don't have MM!!! Maybe they do. Suggesting their symptoms are atypical can be helpful, I know, but no one knows here if they have it or not.......let's not diagnose by chat room. My 2 cents and only my opinion!!!! Lisa :)
     
  2. Gwendelyn

    Gwendelyn New Member

    Wow 40 posts!

    I just stopped by to see what other's responses were and was little surprised by the number of posts.

    Carribean is right. I'm sure Nassman got the message to tone it down a little. Let's not beat a horse until its dead (or was that beat a dead horse :-\ ). Nassman contributes lots to this forum and I would hate to see him run off.

    Nassman the forum would not be the same without you.

    Gwen
     
  3. Isis_M

    Isis_M New Member

    I want straight facts as well, but I want them presented in a tactful, respectful manner. I hardly consider that to be the same as being treated with the proverbial "kid gloves". It's quite possible for someone to be straightforward without being tactless or disrespectful. JMO, of course.
     
  4. eedad1

    eedad1 New Member

    gtrvox: I was agreeing with Nassman and offering my own life experience as evidence that I do not think he is out of line. Dial back the thought police. Did I tell anyone 'this stuff will kill you...don't take it' - no I did not. I thought this was a safe place to share our experiences and occasional advice? If I want to agree with someone and offer up my own life experience in support, I should be able to do this, right? I do not remember passing judgment on YOU or anyone else here. I am happy you find relief from daily doses of these drugs. We all do what we believe we need to do to tame this beast and others in our own lives. When members have to take extra measures in order not to offend, then this forum loses something. Most of what has been written under this subject has been directed at provocative/antagonistic speech and I would hate for this to become a soapbox for some to brow beat others into more congenial language for the sake of hypersensitivity of a few.
     
  5. Titus

    Titus New Member

    I've been to one neurologist and two neurotologists during the past 4 years. All three have recommended a small dose of Valium to help with my constant awareness of dizziness/balance. This small dose has helped. I've do increase it after I have a full-blown vertigo attack, or when I'm flying. I also take an occassional Xanax. The doctor I saw at University of Pittsburgh School of Medicine is a world-famous specialist in treating vestibular disorders. He runs The U of P Balance Center where research is conducted. People come from all over the world for vestibular and balance-center brain testing. Because my brain stem was damaged in a car accident, it doesn't compensate for my loss of balance from bi-lateral menieres. Valium is the drug of choice for long-term use, according to my doctor. He was the "third opinion" and a very expensive one :D

    I think it's important that people are aware of a possible dependency on Benzos and they should ONLY follow the advice of a trusted doctor and expert in treatment. Neither my advice nor Nassman's should be taken above that of their doctor's.

    BTW, I was on Xanax for 10 years because I have a heart arrhythmia and suffered panic attacks every time my heart would go out of sync. I went off it without a problem.

    Everyone is different. Not all have mm. Unfortunately, some have other conditions as well as mm and some have other conditions without mm. This support forum is for all of us and we need to seek harmony as our "welcome wagon" for newbies.

    ALWAYS and NEVER usually don't make for harmony. Stating opinions or even clinical evidence without putting down another goes a long way.
     
  6. gtrvox

    gtrvox our pooch Hugo

    eedad: Fair enough - but in your original post you did say "they are awful to use every day" which, in my book, is passing judgement.

    Look, let's not blow this out of proportion. Confrontation is not my aim here. Obviously, we are all entitled to our opinions, free country, yada yada. No thought police, no censorship. You think benzos bad, I think benzos good...so what? I'm just looking to tone down the rhetoric and use tactful language, that's all.

    Kim: excellent post, thanks!

    George
     
  7. SpinininOhio

    SpinininOhio New Member

    Can we recap here, folks.

    1. Nassman says something rather blunt to someone (we don't know what exactly other than the portion nassman shared).
    2. Said someone says something rather blunt back (we don't know what exactly).
    3. Nassman comes on and (use blunt word of choice) about how unfairly he is being treated.
    4. 45 posts later, people are taking sides and nassman is getting pats on the back

    If nothing else, we are a self entertaining group. Pretty hilarious when you think about it.

    See you on the threads that will help me learn how to deal with this beast 'formerly known as Meniere's'.

    SpinininOhio
     
  8. johnny pinwheel

    johnny pinwheel New Member

    i don't know what posts you are refering to . but i do have chronic vertigo. not that it happens every day, heck ,i sometimes go weeks at a time without it. what the doctors mean by chronic is it always comes back, which it does . i'm only 44 so i agree you should only use the drugs you mentioned at times of need. i don't want a drug habit. alot of what you said was good but "blanket" statements cover people that you don't know or walk in their shoes. speaking of freedom and democracy , i believe people should be free to choose any treatment or perscription without hearing about it from strangers. just my opinion.
     
  9. Amethyst

    Amethyst She believed she could, so she did.

    ....I just can't help myself here...just have to add my two cents ;)

    I think of Nassman much like Dr. House on the show 'House' - his approach might be rather on the crusty side...but man, does he know his stuff. And frankly I like honesty - to me it's ok if it's not sugar coated. He's strong in his statements and doesn't hold back the punches but he's also obviously very intelligent, well informed, and definitely here trying to help.

    I like all the different personalities I see here on the forum. I agree that working a little on the delivery so as not to scare of newbies is important, but as Linda said, I've already seen changes in his approach during the year I've been here.

    Nassman, your posts are incredibly valuable.

    Amethyst
     
  10. ToniG

    ToniG Guest

    Welcome back JPW!
     
  11. Caribbean

    Caribbean New Member

    I must say;

    This thread has over 1000 hits and 50 replies, It is hitting a spot in many of us.............So there must be a message ?

    Something is making this thread very "HOT" :eek:

    Interesting. ;)
     
  12. Aladdin

    Aladdin Guest

    I think too nassman that you are sometimes arrogant and a tad overbearing and way too opionated but hey that's just my two cents...but you do have solid information and i believe a right heart for the forum
     
  13. cdedie

    cdedie Designed by DizzyNBlue


    We are a self entertaining group! Grab on to something someone said and entertain ourselves to ad nauseum (sp)! And I really DID NOT expect to still see this going. :eek: ::)
     
  14. Linda1002

    Linda1002 New Member

    Nassman is an interesting phenomenon. This always seems to happen with him. I guess he has a magnetic personality :)!
     
  15. cdedie

    cdedie Designed by DizzyNBlue

    That's a great way to put it Linda!
     
  16. jparenteau59

    jparenteau59 New Member

    Nassman, you are very right. Those drugs do cause the same effects on the body. I am a testament to that. I was diagnosed years ago and given xanax to help with the side affects of the vertigo. Well, to make a long story short, they helped. Yes, they did indeed. Years later, I think around 3 years, I had to be weaned off the drugs. It effected my sleep, and I also thought I had vertigo all day, every day. I now know the difference between the drugs effecting me, and the vertigo. It was a terrible time.
    I don't know what started all this, haven't been able to get on for quite a while. Just thought I had to write regarding drugs and the side effects on people with our problems.
     
  17. Amethyst

    Amethyst She believed she could, so she did.

    Oh so very true!
     
  18. Bayhi

    Bayhi New Member

    I love my Valium. It works.
    I take from this board the things that seem to help me and disregard all the rest.
    That's all I have to say.
     
  19. Caribbean

    Caribbean New Member

    Last I heard, Valium & Xanax were only available by a Doctors script..................So who are you going to believe your MD.
    who gave you the script or strangers on a bulliten board?

    If it works for you then go for it!

    I'm not saying that gobbeling these meds like Jellybeans is good for you ..............of course not!

    I have posted that prescribed Xanax has helped with my overwhelming tinnitus, I was prescribed one tablet of 2 mg. a day, I have cut my self back to one quater of a tablet 0.5 mg. a day because I'm concerned about over doing it with these meds.
     
  20. SpinininOhio

    SpinininOhio New Member

    Okay, I’m back because of some interesting and positive PMs I received in response to my post.

    Nassman IS definitely an interesting phenomenon. Magnetic? Maybe. Paradoxical. Yes.

    1. Nassman speaks bluntly to others, but then comes on and ‘whines’ (sorry if I’m blunt) when people respond bluntly to him.

    2. Nassman tells others to go live their lives instead of posting what they think would be helpful, but then reads and posts frequently on the board.

    3. Nassman works hard to ensure we base our thoughts on research and solid information (not a big supplements supporter), but then says things like, “if diet affects your symptoms, you don’t have Meniere’s”. If Meniere’s is idiopathic and we’re not really sure what causes it, how can we be sure diet won’t affect it in some (even small) way. And how can we be sure people don’t have both Meniere’s AND a food allergy that exacerbates the same symptoms.

    This is not about bashing Nassman. I was one of the first to call off the Nassman bashing a few months ago and defend him. He is a wonderful contributor to this board.

    This IS about the fact that Nassman, like the rest of us, is a human, and fallible And bright, and articulate, and worth listening to, and sometimes, a pain in the _____ and capable of making blanket statements. I am concerned about some of the posts idolizing bluntness. For a society to work, we have to recognize the good and bad things in others, and make allowances, whether those bad things are being too blunt or being too sensitive. I vote that we continue to err on the side of being sensitive – it takes a few extra seconds to think through what you are saying and its effect on others – yet does so much to give others the permission to be themselves and offer what they have to offer, however flawed and wonderful, that may be.

    As far as the drugs… I had a bad experience with Lorazepam in which a doctor who did not know what he was doing had me on a maintenance dose that had to be increased as Nassman pointed out, created an overall dizziness that was as debilitating as living without the drugs (as I believe Nassman pointed out), and created some nasty withdrawal symptoms when I went off of the drug. I am not a big supporter of the drugs, but I’m not an omnipotent overlord who can see into others’ situations and how they respond to the drug or what type of care (hopefully better than mine) they are receiving while on it. Just be very careful when using these drugs (and if you are having horrible overall dizziness, consider it may be a side effect of the drug). Like I’ve said ad nauseum on the board, we just buried my DDSIL and it is looking more and more like the cause was the mix of drugs she was on to control bipolar disorder. Psychotropic drugs can be very nasty when not controlled with impeccable care. Be very aware of what you are getting into and demand that the doctor have irreproachable oversight over the use of these drugs.

    SpinininOhio
     

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