Discussion in 'Your Living Room' started by CarolineJ., Sep 23, 2009.

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  1. CarolineJ.

    CarolineJ. New Member

  2. Bastet

    Bastet New Member

    Re: Feeling totally dismissed, demoralized

    awww....we're here for you. We all understand and have spent many hours letting the tears flow. *hugz*
  3. Rusty

    Rusty New Member

    Re: Feeling totally dismissed, demoralized

    I'm really sorry to read this and I'd hug you if I could.

    If he's never heard of it, doesn't believe in it , and didn't offer to refer you to someone who could help, or find someone who could help...

    he doesn't sound very useful. I'd seek another opinion from another doctor.
  4. Buffy-Again

    Buffy-Again New Member

    Re: Feeling totally dismissed, demoralized

    I totally understand, my ENT I used to see told me there was nothing more they could do for me. I was crushed. Then I became upset and said I am not going to take this type of treatment. I now see a Neurotologist.....He has been a GOD send. He listened to me and told me what I was feeling he has heard alot of times.

    I left his office feeling validated. You need to see a inner ear specialist. Don`t give up and keep on telling them how you feel. What you are feeling I myself have felt. In fact since my laby there are some sounds that sound really different to me. I hope you have a better chance with your next doctor. I would recommend you see a Neurotologist.

    Good luck on your journey and keep us posted.

  5. June-

    June- New Member

    Re: Feeling totally dismissed, demoralized

    Don't prejudge the neurologist. Ask your family dr for a referral to a different ENT or find one yourself. Better yet, find a neurOTOlogist. You deserve and need better care and this jackazz is never going to change. Even if you have to travel, find someone else. Ask around this board for oto's in your area that people here recommend. Check out the thread on the database board about dr's people recommend.

    Most of us have had a similar experience. It's a waste of time to think someone like that is going to help you.
  6. Wobbles

    Wobbles Storm (April 15, 1992 - November 17, 2006)

    Re: Feeling totally dismissed, demoralized

    Will you be going to neuroTologist or a neurologist?

    There are two forms of hearing sensitivity that some MM’ers experience: hyperacusis and recruitment. You can Google for descriptions. I am surprised that your ENT did not explore these as possibilities when you mentioned hearing sensitivities.

    I’ve had hyperacusis. I experienced pain in my ears at very low levels of sound. I was forced to wear earmuffs and sometimes had to bury my head under a pillow while wearing earmuffs to escape sound.

    I wish you luck with your next appointment and hope you feel less demoralized from your experience with the ENT. We’ve all had unfortunate encounters with doctors; they have bad days, just like we do.

  7. CarolineJ.

    CarolineJ. New Member

    Re: Feeling totally dismissed, demoralized

  8. June-

    June- New Member

    Re: Feeling totally dismissed, demoralized

    Caroline, I know what you mean. Been there with the arrogant dr. But try not to let on when you see the next one. They are people too and they will pick up on defensiveness and maybe get defensive themselves. But I am entirely sympathetic to your situation. Don't they teach these people common consideration when they go to med school?
  9. nassman

    nassman Guest

    Re: Feeling totally dismissed, demoralized

    Hello Caroline.

    I live in Toronto and I can tell you that the top neurotologists are as follows:

    1) Dr. Rutka - Toronto General Hospital

    2) Dr. Chen (or Chan) - Sunnybrook Hospital

    3) If you are willing to take the drive to London, Ontario, Dr. Parnes is also very good. He is at the London Health Sciences Center (Western University).

    Send me a Private Message if you need help or some suggestions!

    Good luck!!!
  10. Tara

    Tara New Member

    Re: Feeling totally dismissed, demoralized

    I'm sorry it didn't go so well with you. Doesn't ease my fear as I wait for my appt. with the neurotologist though! Keep hanging in there, you will find help. (((Caroline)))
  11. summer

    summer New Member

    Re: Feeling totally dismissed, demoralized

    Oh my gosh CarolineJ, we must be seeing the same guy.
    Your situation sounds the same as mine only two weeks ago except my guy said hed never in his 15 years as an ear specialist come across my symptoms. My tympanogram or what ever its called was also perfectly normal as was my hearing test. He also thought I was having him on with my sensitive hearing and weird tinnitus. My neurologist Im sad to say was not much better. I drew a family tree of my family history of migraine and hearing loss which is on both sides of my family as I thought it might be relavent but it was obvious by his whole demeaner I was only going to embarase myself if I produced it as he was so uninterested.
  12. survivedit

    survivedit New Member

    Re: Feeling totally dismissed, demoralized

    Caroline - sorry to hear about that experience. That ENT sounds like he needs to be shown the door. In Burd's infamous words, "Fire his ass!" It's not so much that he was unprofessional and fairly ignorant, but that you got so upset by it. Isn't the first rule of the Hippocratic oath to do no harm? On the bright side, you now know to never go to that guy again and I hope you write a letter to his office and tell him why. Most ENT's are not well versed in Meniere's and he was probably just not willing to expend the effort it takes to help a person with MM find a suitable plan for treatment.

    As for hyperacusis....he's never heard of it? It can't be that uncommon. I've had a pretty stout bit of it going for the last 3 days myself right now. People's voices sound like whips being cracked, setting a plate down on the table is like a gunshot next to my ear. It's very annoying and seems to be exacerbating some other symptoms as well.

    As others have said, please don't pre-judge the neurologist. It's frustrating to have to go to all the trouble to find a good doc, but they are out there and it's worth it to finally get one that is going to help.

    All the best

  13. Sheri61

    Sheri61 New Member

    Re: Feeling totally dismissed, demoralized

    >>>He went on to tell me that there is no such thing as super sensitive hearing and that you can either hear or you can't.<<<

    So, with his logic, people who've just lost 50% of their hearing are just fine, in his opinion? I mean, they CAN hear, right? ::)

    Go elsewhere. As soon as you can.
  14. Shining

    Shining "knowing is half the battle" ~~~GI Joe

    Re: Feeling totally dismissed, demoralized

    caroline, sometimes the hardest part of this disease is dealing with the doctors. *shakes head* I know how you feel. Wishing you the best in finding competant doctors who bypass the belief thing and go straight to treating your legitimate concerns!
  15. Linda1002

    Linda1002 New Member

    Re: Feeling totally dismissed, demoralized

    Many ENTs are not all that familiar with Meniere's or other vestibular disorders. As others have said, it's best to see a neurOTOlogist (specialist).
  16. Aznalla

    Aznalla New Member

    Re: Feeling totally dismissed, demoralized

    Ditto-so much agreement in this statement. What a Jacka** this doc was.

    After hearing about such poor treatment from ENTs I am going to start a new post to let forum members address ENTs, docsetc. about how you want to be treated and what treatment left you feeling bad afterwards. Stay tuned.
  17. gardenfish

    gardenfish New Member

    Re: Feeling totally dismissed, demoralized

    your "former" doctor did not treat you with the dignity that you deserve. I will call him an asshole. Feel free to do that yourself. Looks like Nassman gave you some docs to call. Best wishes to you Caroline.
  18. Maple Street

    Maple Street New Member

    Re: Feeling totally dismissed, demoralized

    Caroline, I'm like you in that I write everything down before I go to the doctor, thinking/hoping it will help. I don't want to leave anything out. Then I get there and find most doctors don't give a hoot about what I have to say.

    One of my doctors was also a total a** and told me I was a whacko. As soon as I got into my car I burst into tears. It is so discouraging to do what you have to do and have a doctor treat you like this. There is no need for it. I guess 50% of them have to graduate in the bottom of their class. If he hasn't heard of hyperacusis I think he needs a refresher course.

    Don't judge all the ENT's/et al by this one jerk. There are some good ones out there.

  19. Aladdin

    Aladdin Guest

    Re: Feeling totally dismissed, demoralized

    hope you can find another oto soon - best wishes
  20. survivedit

    survivedit New Member

    Re: Feeling totally dismissed, demoralized

    I think it's very useful to provide names of good docs to one another.

    I think it would also be useful to provide names of docs to avoid to one another.


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